Tuesday, November 22, 2005

Tests and diagnosis discussion for Autism

Autism is classified as one of the pervasive developmental disorders. Some doctors also use terms such as "emotionally disturbed" to describe people with autism. Because it varies widely in its severity and symptoms, autism may go unrecognized, especially in mildly affected individuals or in those with multiple handicaps. Researchers and therapists have developed several sets of diagnostic criteria for autism. Some frequently used criteria include:*


Absence or impairment of imaginative and social play
Impaired ability to make friends with peers
Impaired ability to initiate or sustain a conversation with others
Stereotyped, repetitive, or unusual use of language
Restricted patterns of interests that are abnormal in intensity or focus
Apparently inflexible adherence to specific routines or rituals
Preoccupation with parts of objects

1
Parents are usually the first to notice unusual behaviors in their child. In many cases, their baby seemed "different" from birth-being unresponsive to people and toys, or focusing intently on one item for long periods of time. The first signs of autism may also appear in children who had been developing normally. When an affectionate, babbling toddler suddenly becomes silent, withdrawn, violent, or self-abusive, something is wrong.

Even so, years may go by before the family seeks a diagnosis. Well-meaning friends and relatives sometimes help parents ignore the problems with reassurances that "Every child is different," or "Janie can talk-she just doesn't want to!" Unfortunately, this only delays getting appropriate assessment and treatment for the child.2

To date, there are no medical tests like x-rays or blood tests that detect autism. And no two children with the disorder behave the same way. In addition, several conditions can cause symptoms that resemble those of autism. So parents and the child's pediatrician need to rule out other disorders, including hearing loss, speech problems, mental retardation, and neurological problems. But once these possibilities have been eliminated, a visit to a professional who specializes in autism is necessary. Such specialists include people with the professional titles of child psychiatrist, child psychologist, developmental pediatrician, or pediatric neurologist.

Autism specialists use a variety of methods to identify the disorder. Using a standardized rating scale, the specialist closely observes and evaluates the child's language and social behavior. A structured interview is also used to elicit information from parents about the child's behavior and early development. Reviewing family videotapes, photos, and baby albums may help parents recall when each behavior first occurred and when the child reached certain developmental milestones. The specialists may also test for certain genetic and neurological problems. 2

After assessing observations and test results, the specialist makes a diagnosis of autism only if there is clear evidence of:


poor or limited social relationships

underdeveloped communication skills

repetitive behaviors, interests, and activities.

People with autism generally have some impairment within each category, although the severity of each symptom may vary. The diagnostic criteria also require that these symptoms appear by age 3.

However, some specialists are reluctant to give a diagnosis of autism. They fear that it will cause parents to lose hope. As a result, they may apply a more general term that simply describes the child's behaviors or sensory deficits. "Severe communication disorder with autism-like behaviors," "multi-sensory system disorder," and "sensory integration dysfunction" are some of the terms that are used. Children with milder or fewer symptoms are often diagnosed as having Pervasive Developmental Disorder (PDD).

Although terms like Asperger's Disorder and PDD do not significantly change treatment options, they may keep the child from receiving the full range of specialized educational services available to children diagnosed with autism. They may also give parents false hope that their child's problems are only temporary.2

The 14 Signs Of Autism

The 14 Signs Of Autism

May avoid eye contact

May prefer to be alone

Echos words or phrases

Difficulty interacting with others

Spins objects or self

Insistence on sameness

Inappropriate attachements to objects

Inappropriate laughing or giggling

May not want cuddling

Difficulty in expressing needs; may use gestures

Inappropriate response or no response to sound

No real fear of dangers

Apparent insensitivity to pain

Sustained unusual or repetitive play' uneven physical or verbal skills


Created by Future Horizons

Monday, November 14, 2005

Is There a Cure?

Understanding of autism has grown tremendously since Dr. Leo Kanner first described it in 1943. Some of the earlier searches for "cures" now seem unrealistic in terms of today's understanding of brain-based disorders. To cure means, "to restore to health, soundness, or normality." In the medical sense, there is no cure for the differences in the brain, which result in autism. However, better understanding of the disorder has led to the development of better coping mechanisms and strategies for the various manifestations of the disability.

Some of these symptoms may lessen as the child ages; others may disappear altogether. With appropriate intervention, many of the associated behaviors can be positively changed; even to the point in some cases, that the child or adult may appear to the untrained person to no longer have autism. The majority of children and adults will, however, continue to exhibit some manifestations of autism to some degree throughout their entire lives.

What is the prognosis?
Our children's symptoms are a result of the confusion and difficulties that they experience in adapting to a world that makes little sense to them. Our understanding of their point of view, our gentle teaching and support will help them grow and to experience the world as a safer place.

Symptoms usually begin to show when these children are between 12 and 30 months. Symptoms may change over the years and of course all children, including children with autism, learn as they grow.
However, there is no cure for PDD or autism. These children must grow and develop with the challenges of their disability.

Some never outgrow their need for close supervision. Others will need ongoing supervision but will achieve some independence. A few will adapt to society well needing only a little more guidance and support than the average person. Some will experience most of the symptoms of autism throughout their lives, while others will experience a lessening of many or most of their challenging problems.

The PDD diagnosis is much newer, so less is known about prognosis. Doctors believe that while some will continue to require close supervision, more will achieve independence with support and some may be able to adapt successfully to society.

While a prognosis can give a general idea of what to expect, it cannot tell you what a child will not achieve.

References:
Dr. Christopher Gillberg, Centers for Disease Control and Prevention Conference. Autism: Emerging Issues in Prevalence and Etiology. 1997

Diagnostic and Statistical Manual of Mental Disorders 4th ed., (DSM-IV). American Psychiatric Association, Washington, DC. 1994.